Health Privacy Project - Part of the the Institute for Health Care Research and Policy at the Georgetown University Medical Center, HHP is dedicated to raising public awareness of the importance of ensuring health privacy in order to improve health care access and quality, both on an individual and a community level. Major projects include Health Privacy Working Group, Consumer Coalition for Health Privacy, and the State Law Compendium.
Health On the Net Foundation - The purpose of the Foundation is to advance the development and application of new information technologies, notably in the fields of health and medicine.
MIB - Formerly the Medical Information Bureau, MIB maintains medical records for the life insurance industry. You can order your a copy of your records for a fee.
Global Internet Liberty Campaign - The GLIC is a coalition dedicated to taking concerted action to protect rights and liberties on the Internet. Its members include the American Civil Liberties Union, the Electronic Privacy Information Center, Human Rights Watch, the Internet Society, Privacy International, the Association des Utilisateurs d'Internet, and other civil liberties and human rights organizations.
Privacy International - a human rights group formed in 1990 as a watchdog on surveillance and privacy invasions by governments and corporations.
American Civil Liberties Union - As the national civil liberties organization, the ACLU conducts extensive litigation on Constitutional issues that include the right to privacy. Its Washington office lobbies Congress on issues of civil rights and liberties.
Call For Action - CFA is an international, nonprofit network of consumer hotlines that assist consumers through mediation and education in resolving problems with businesses, government agencies, and other organizations.
Consumer Action - A non-profit, membership-based organization, Consumer Action advances
consumer rights, refers consumers to complaint-handling agencies through a free hotline, publishes educational materials and advocates for consumers in the media and before lawmakers.
Consumer Project on Technology - Created by Ralph Nader to focus on a variety of issues, including telecommunications regulation, pricing of ISDN services, and fair use under the copyright law, the CPT works on issues that include the pricing, ownership and development of pharmaceutical drugs and the impact of technology on personal privacy.
Electronic Frontier Foundation - Formed to maintain and enhance intellectual freedom, privacy, and other values of civil liberties and democracy in networked communications, the EFF publishes newsletters, Internet Guidebooks and other documents, provides mailing lists and other online forums, and hosts a large electronic document archive.
Electronic Privacy Information Center - EPIC conducts litigation, sponsors conferences, produces reports, publishes the EPIC Alert and leads campaigns on privacy issues. The Center was established to focus public attention on emerging privacy issues relating to the National Information Infrastructure, such as the Clipper Chip, the Digital Telephony proposal, medical records privacy and the sale of consumer data.
People for Internet Responsibility - The PFIR is a global, grassroots, ad hoc
network of individuals who are concerned about the current and future operations, development, management, and regulation of the Internet in responsible manners.
Privacy & American Business - PAB, a source for tracking new business-privacy issues and for promoting voluntary, balanced consumer privacy policies and practices, is the activity of the non-profit Center for Social & Legal Research.
Privacy Exchange - a free global information resource made possible by grants from an initial group of sponsoring companies and associations in the United States, Canada, and Germany, who saw the vital importance of constructive dialogue and creative work in the areas of data protection involving consumers
and commerce.
Privacy Foundation - Based at the University of Denver, the Foundation has as its objectives: researching technologies that undermine the privacy of individuals; informing the public about what they can do to protect themselves; and influencing lawmakers, corporations and citizens to devise solutions. Original research reports and updated news items posted regularly on the website.
Privacy Rights Clearinghouse - A California-based organization, the
Clearinghouse has produced many fact sheets and an annual report. The Clearinghouse maintains a toll free hotline to provide advice to consumers about their rights.
Private Citizen - Created to stop junk calls and junk mail from invading your privacy, Private Citizen is a consumer organization fighting the direct marketing industry's privacy-abusive practices.
US Privacy Council - The USPC, founded to deal with national privacy issues, is a coalition of US privacy groups andindividuals. USPC works in Washington monitoring legislation and the activities of government agencies. USPC works closely with other groups on privacy issues including National ID cards, reforming credit reporting, Caller ID and international issues.
US Public Interest Research Groups - The PIRGs are non-profit, non-partisan consumer and environmental watchdog groups. PIRGs advocate improvement of consumer privacy laws, preventing identity theft and correcting credit reports. The Groups' fact sheets and reports are available on Web.
CDT Resources
Operation Opt-Out - CDT Operation Opt-Out allows users to opt out of offline marketers and other information gathering organizations, such as banks, Department of Motor Vehicles, and online profiling firms.
CDT Snooper - CDT Snooper provides details regarding the information a Web site may gather about your Internet connection while you surf.
