De-Identified Data
De-identified health data is used in a variety of ways by a range of public and private entities. Applications of this data include quality improvement, public health, research, and commercial uses. However, current de-identification standards in HIPAA are not as effective as they once were at protecting privacy. Advances in technology have made re-identifying health data easier and cheaper than ever before, and, HIPAA does not provide proper protections against re-identification. Stronger standards are needed for de-identified data in order to maintain individuals’ health privacy and build trust in the health care system.
Follow the latest CDT news with Press Releases, Events, and where we've been featured around the Internet.
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Deven McGraw will speak at the Privacy Law and Ethics Meet Biomedical Informatics Event: Deven McGraw will speak at the Privacy Law and Ethics Meet Biomedical Informatics on the topic... |
3/4/2010 | |
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CDT's Health Privacy Project: Encouraging Use of, and Rethinking Protections for "Anonimized" Health Data Press Release: Washington--The Health Privacy Project at the Center for Democracy & Technology today released... |
6/25/2009 | |
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CDT's Health Privacy Project Releases Paper on De-identification of Personal Health Data Statement: CDT's Health Privacy Project today released a paper advocating the need for stronger standards for... |
6/25/2009 |
Policy Posts deliver in-depth analysis of current issues affecting the Internet. These documents are a leading resource for policy makers, the press, industry representatives, students, and others interested in legal and policy issues affecting the Internet.
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| Stronger Protections for, and Encouraging the Use of, De-Identified (and "Anonymized") Health Data | 1) The Importance of De-Identified Health Data 2) De-Identification, Limited Data Set Requirements... | 6/26/2009 |
Find all our latest testimony, papers, and other reports here.
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Encouraging the Use of, and Rethinking Protections for De-Identified (and "Anonymized") Health Data Paper: This paper advocates for stronger standards for de-identification of health data. Patient data... |
Deven McGraw | 6/25/2009 |