It is widely recognized that developments in health information technology (HIT) have the potential to improve health care quality, reduce costs and empower consumers to play a greater role in their own care. However, little progress has been made on resolving the privacy issues associated with the growing liquidity of personally identifiable health information.
CDT’s Health Privacy Project will take on key policy questions, including: the proper role of notice and consent, the right of patients to access their own health records in electronic formats, identification and authentication, secondary uses, and enforcement mechanisms. It will address both the traditional exchange of records among providers and payers, as well as new consumer access services and Personal Health Records.
Health Data Systems Need A Comprehensive Privacy and Security Framework - CDT's Health Privacy Project today released a paper urging policymakers and the private sector to develop and implement a comprehensive privacy and security framework to govern the wide range of computer and Internet-based systems being created to share sensitive health information. The paper examines the key issues confronting the adoption of information technology in the health care field and offers suggestions on policies and business practices that will protect patient rights while facilitating the kinds of information sharing that can reduce costs and improve care. May 15, 2008
Share this articleSenate Approves Vital Health Privacy Bill - CDT applauds the Senate's passage of HR 293, the Genetic Information Nondiscrimination Act of 2007 (GINA) by unanimous consent. The House is expected to quickly pass the measure. The bill represents a significant step forward in protecting health privacy because it prohibits the use of genetic information by employers when making hiring decisions or by health insurers when making coverage decisions or adjusting premiums. Under GINA, employers and insurers also would not be allowed to impose genetic testing requirements. CDT is urging the President to quickly sign the bill into law. April 25, 2008
Major Player Emerges on Health Information Technology and Privacy - CDT announced today it is joining forces with the Health Privacy Project, creating a major voice to address the privacy challenges posed by the electronic exchange of personal health information. CDT’s Health Privacy Project will take on key policy questions, including: the proper role of notice and consent, the right of patients to access their own health records in electronic formats, identification and authentication, secondary uses, and enforcement mechanisms. It will address both the traditional exchange of records among providers and payers, as well as new consumer access services and Personal Health Records. March 11, 2008
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