It is widely recognized that developments in health information technology (HIT) have the potential to improve health care quality, reduce costs and empower consumers to play a greater role in their own care. However, little progress has been made on resolving the privacy issues associated with the growing liquidity of personally identifiable health information.
CDT’s Health Privacy Project will take on key policy questions, including: the proper role of notice and consent, the right of patients to access their own health records in electronic formats, identification and authentication, secondary uses, and enforcement mechanisms. It will address both the traditional exchange of records among providers and payers, as well as new consumer access services and Personal Health Records.
CDT Endorses Policy Framework for Consumer Health Record Services - CDT has joined prominent health care providers, Internet companies, insurers, and other consumer advocates in endorsing a set of practices for new Internet services that allow individuals to access and maintain their personal health information. The framework, developed in a collaborative process organized by the Markle Foundation, recommends a detailed and comprehensive set of practices that can help protect the privacy and security of Personal Health Records (PHRs) and other services. June 26, 2008
Share this articleCDT Policy Post: Privacy and Security Principles for Health Information Technology - CDT issued a policy post today on the topic of Privacy and Security Principles for Health Information Technology. In the document, CDT emphasizes the importance of building privacy and security into e-health systems from the outset and identifies the basic requirements of a comprehensive privacy and security framework for health information technology. The document makes several suggestions for Congress to consider when crafting legislation; it also calls on federal lawmakers to build a comprehensive framework for e-health through the enactment of incremental, workable policy solutions. June 24, 2008
Share this articleCDT Testimony Supports Draft Health Information Legislation - CDT today testified before the House Health Subcommittee in support of draft legislation regarding health information technology and privacy. CDT supports the draft language because it takes critical steps toward the goal of a comprehensive privacy and security framework, and targets many of the key issues raised by the new e-health environment. CDT urged the Subcommittee to develop this framework by building on the HIPAA Privacy and Security Rules. CDT also recommended including strong protections for health information held, or managed on behalf of consumers, by employers and companies not part of the traditional health care system. June 04, 2008
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